Share Your Caregiver Story

We want to hear from you!

We’re looking for parent caregivers to record video testimonials about their experience. If you’d like to submit a video, please follow the instructions below. Your video may be used as part of online “bonus content” and other supplementary materials shared with screening audiences. Please note, we are appreciative of all submissions, but not all will be featured.

Reach out to info@caregiverdoc.com if you have questions.

Instructions

  • Your videos must be 3 MINUTES or less. Make sure to leave a slight pause before you start talking and after you stop. Record separate videos for each topic you want to discuss.
  • Don’t worry about saying everything perfectly — our goal is to get your honest thoughts.
  • If more than one person would like to share (spouse, siblings, etc.), please record separately, one person per video.

How to Record Your Video

  • Please record with your phone (not a webcam) in a vertical position.
  • Make sure you’re in a quiet space.
  • Try to find a spot with good lighting. Try facing a window.
  • Keep the camera level with your face so you’re looking straight at it, not up or down.

Topics

Remember…record a separate video for each topic, and each video must be 3 MINUTES or less.

  • Siblings

    Tell us about your experience parenting multiple children, including at least one with profound disabilities or complex medical needs. Please feel free to have siblings record a separate video as well.

    • How do you balance your parenting and caregiving roles for all of your children?
    • What are the most challenging aspects of this role? What are the most rewarding?
    • Are your children (as kids or adults) involved in caregiving? What are your expectations for them in the future?
    • How do your children (as kids or adults) describe their experience?
    • What do you wish other people knew about this topic?

  • Respite
    • Do you have opportunities for respite? What does this look like?
    • If you do not have respite, what are the barriers?
    • What impact does respite (or the lack of it) have on your wellbeing?
    • What would have to change for you to be able to find more respite?

  • Long-Term Care
    • What are your plans for the long-term care of your loved one?
    • What options are you considering? What are your concerns?
    • What do you believe is the ideal scenario for you and your loved one?

  • Self Care
    • What does self care mean to you?
    • Are you able to find opportunities for self care? If so, how? If not, what are the barriers?
    • What impact does self care (or the lack of it) have on your wellbeing?
    • What would have to change for you to be able to do more self care?

  • Friendship
    • How is friendship important to you as a caregiver?
    • How has caregiving impacted your friendships?
    • What is complicated about friendship as a caregiver?
    • What are the best ways for friends to support you?
    • Think about a friend that you really appreciate. What makes them great?
    • What do you wish your friends understood about your life?
    • What do friends do or say that makes things more difficult for you?

  • Family Relationships
    • How has caregiving impacted your family relationships?
    • What is complicated about family relationships as a caregiver?
    • What are the best ways for family to support you?
    • Think about a family member that you really appreciate. What makes them great?
    • What do you wish your family understood about your life?
    • What do family members do or say that makes things more difficult for you?

  • Marriage & Relationships
    • How has caregiving impacted your marriage or relationship with a significant other?
    • What is complicated about marriage/personal relationships as a caregiver?
    • What are the best ways for partners to support each other?

  • Healthcare
    • Do your personal healthcare providers ask about your caregiving role and how that impacts your health?
    • What are the best ways for healthcare providers to support you and your family?
    • What do you wish healthcare providers understood about your life?
    • Think about the best healthcare provider you have worked with. What makes them great?
    • What do healthcare providers do or say that makes things more difficult for you?
    • What are your healthcare providers doing right? What could they do better?

  • Employment
    • How has caregiving impacted your ability to have a job/career, or grow in your career?
    • What is complicated about being a caregiver and having a job?
    • What makes you a great employee as a caregiver?
    • What does your job/career mean to you as a caregiver?
    • Do you feel any stigma in the workplace related to your role as a caregiver?
    • What are the best ways for employers to support you as an employee who is also a caregiver?
    • What is your employer doing right?
    • What do you wish your colleagues understood about your life?

  • Education/School
    • What are the best ways for your child’s teachers/admin/staff to support you and your family?
    • What is your child’s school doing right? What could they do better?
    • Think about the best educator/admin you have worked with. What makes them great?
    • What do you wish your child’s teachers/admin/staff understood about your life?

  • Public Programs
    • If you could wave a magic wand and change anything about “the system,” what would it be?
    • What public programs effectively benefit your family?
    • What policies or programs would have the biggest positive impact on your family?
    • What is your state/community doing right? What could they do better?
    • What are the biggest challenges you have with public programs?
    • What do you wish policymakers understood about your life?

Submit Your Videos

Please email your video(s) to info@caregiverdoc.com. If the file is too large to email, you can upload it to a service like Google Drive, Dropbox or WeTransfer, and send a link by email. Please ensure the files are not compressed, so we receive the highest quality version.