1 in 5
21.3% of Americans are caregivers
Caregiver-Friendly Healthcare Practices Toolkit
Fact Sheet: Caregivers & Healthcare
Created in partnership with
More Americans are acting as caregivers than ever before. Yet the complexities of the healthcare system pose unique challenges for caregivers and their families. Take a look at the data below to get a snapshot of the current landscape.
Prevalence of Caregiving
The number of caregivers in the U.S. is increasing.
40%
Caregivers who live with their dependents
24 Hours
Average care provided each week
60%
Caregivers who provide assistance with medical tasks
Navigating the Healthcare System
In addition to daily tasks, caregivers spend time driving to-and-from appointments, working with insurance companies, and coordinating care among doctors, therapists, and specialists. The cost of healthcare strains many families.
26%
Caregivers who find it difficult to coordinate care across healthcare providers
27%
Caregivers who find it difficult to obtain affordable services
18%
Caregivers who experience financial strain
Impact on Physical & Mental Health
Caregivers often prioritize the needs of their dependents over their own. This leaves lasting impacts on their physical, mental and emotional health. The 24/7 nature of caregiving can be isolating and lonely.
21%
Caregivers who report feeling alone
21%
Caregivers who report their own health as “poor”
23%
Caregivers who say providing care has worsened their health
31%
Dependents who have any paid help for caregiving needs
Caregivers and Healthcare Providers
Clinicians have a unique opportunity to assess caregiver health and intervene early when problems arise, but they don’t always take advantage of it.
13%
Caregivers whose healthcare professionals have asked about their wellbeing
55%
Caregivers reporting that clinicians have assessed for care-related needs
29%
Caregivers relying on healthcare professionals as care resources
Ready to create a more caregiver-friendly healthcare practice?
Here are ways you can get started:
Explore the Caregiver-Friendly Healthcare Practices Toolkit
Learn how healthcare providers can improve outcomes by recognizing and equipping caregivers.
Host a Screening of the “Unseen” Documentary
The “Unseen” documentary gives an unfiltered, honest glimpse into the lives of caregivers and their families.
Connect with the Child Neurology Foundation
The Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have the ongoing support from those dedicated to treatments and cures.
References and Data Sources
U.S Bureau of Labor Statistics, 2020 Report: Caregiving in the U.S.
